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Rejoice in the LORD always !

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Thursday, February 18, 2010

Update

All the kids have a nasty cold and cough, taking a week or so to get better. But it has hit Gracie the worst she is pitiful. We are praying she will get better soon, she has not eaten well for a week now. And we can tell she is loosing weight. Hopefully she will recover soon or we will have to go see the doctor.
We have upped Jonathan's medication and he had been seizure free for almost 2 weeks, until Wednesday night at church. He actually started shaking which was the first one he has done that. Thankfully he remained conscious, his upper body was shaking for about a minute. After the seizures he is groggy and very sleepy, after a short rest he was back to normal. Please continue to pray that we will make the right choices with him and the medical care we seek.

Thursday, February 11, 2010

Thank You God

Thank you God for Dirty Dishes.
They have a tale to tell.
While other go hungry
we are eating very well.
With home & health and happiness
I should'nt want to fuss.
By this stack of evidence
GOD has been good to us.

I love this, when we get to a new house I want this painted on our Kitchen wall.

Tuesday, February 2, 2010

So Many Decisions..........

We took Jonathan to the Neurologist yesterday, this is the first time we have seen her since the Hospital stay. She is a very nice doctor and seems very knowledgeable in her field. We had many questions for her and she answered most of them well. But I am just not happy with her way of treatment. Which seems the answer to all his problems is just give him more medican. And I am not crazy about that, the medican is having some sie effects we don't desire for our little guy. It is making him so sleepy he can hardly function at times, and the aggressiveness is getting worse. The sleepy part I cant deal with, I miss the way he used to be. It makes me sad everyday when he is wiped out by lunch time. She wants us to double his dosage and see how he does, but I am scared to do this as I think it will make him even more sleepy. He is still having seizures and I know we need to get them under control but I am not sure to keep drugging him is the best option. SO now we are starting our search for a new Child Neurologist to get a second opinion. We have considered Vanderbilt and the hospital in Chattanooga. We still have to do a little more research and see which would be the best fit for us. This is a very frustrating process as I want to trust the doctor and do what she says but my gut does not think it is the best. I guess I need another Doctor to tell me the same thing then I will be ok. But you never know they may something totally different. I just want to make sure I am doing what is best for Jonathan so he can be a normal little boy who can play with out falling asleep. I will continue to search and PRAY that God will give us wisdom as we decide what to do. If anyone out there had any advice send it my way.