
We are facing a new trial in our home, that we hoped we would never face but GOD is good and will bring us through.. Tuesday we walked in the boys room and Jonathan was crying , Matt picked him up his back went stiff and his eyes rolled back in his head he was unconscious for a couple of mins.. He came to and just cried for 10 minutes and then he kept saying his right arm was hurting. We called the Doc and they said it sounded like a partial seizure and we could come in in the morning to see him. We went in Wednesday morning and he had some weakness in his right arm and leg so they sent us straight to Children's for a CT scan of his brain. Just to make sure it was not a small stroke. Everything was perfect.. So we head on to Matt's parents to let him take a nap. But by the afternoon he was not using his leg too much. So our pediatrician called the Neurologist on call wanted us to come back b/c she said it sounded like a stroke and she wanted to do more test. So after much worrying, praying and crying. We take him back to the ER, they run all kinds of labs and IV him to run fluids. Admit us and the Neuro ordered a EEG (to monitor the activity in the brain) and MRI for Thursday morning. After a long night of not much sleep they did the test. The EEG showed LOTS of abnormal brain activity. Which means he was having a seizure the entire test.. My jaw hit the floor when she told me that. He looked so normal I was laying in the bed with him during the test. So what does this mean for us now, my baby is seizuring all the time ???? She recommend us to place him on anti seizure med 2X a day and re-evaluate in 2 years. The MRI came back normal so no permanent damage has been done and no stroke took place. Which we are so grateful for. The seizures are taking place on the left side of his brain which is where the majority of learning , speaking etc is at. We have been concerned about his speech for some time and had plans to get him evaluated for speech therapy. But she seems to think this is a result of the seizures. So praise GOD we have answers and nothing so major that can not be helped with medication. And God is bigger than any problem that we will face today. Please continue to pray for Jonathan as we try to find the right medication that will control the seizures and that the side effects will not be to great. He is doing good, back to normal and only one small seizure since we have been home.. I will post some of the hospital pics soon, he was too cute in his little gown which he decorated with CARS stickers. When we walked around with the IVs hooked up and I was pulling the pole he kept saying he was a puppy on a leash. I love the humor of children ..

1 comment:
Oh Elizabeth I am sorry to hear this. I know you are having issues with the medications. I work for a family practice and we have several children with seizure problems. The good new is our doctors have been able to give meds that don't cause them and that don't cause all the side effects. Of course every kid reacts to meds differently. Keep praying and have a little patience and maybe yall can try different meds and see which one works best for him. I miss ya!!
Rene'
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